HealthCare | Data | Publicly available biomedical data

Panel Study of Income Dynamics (PSID)

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The Panel Study of Income Dynamics (PSID) is a longitudinal study that began in 1968 with a nationally representative sample of over 18,000 individuals living in 5,000 families in the United States. In this study, information on these participants and their descendants has been collected continuously, including data covering employment, income, wealth, expenditures, health, marriage, childbearing, child development, philanthropy, education, and numerous other topics. The PSID is directed by faculty at the University of Michigan, and the data are available on this website without cost to researchers and analysts. The study has three stages: Core Stage, Child Development Supplement (CDS), and Transition into Adulthood Supplement (TAS). 

 

Core Stage is the primary stage of data collection and involves a survey of all sample members and their families. The survey collects information on income, employment, education, health, and family structure.

 

Child Development Supplement focuses on the development of children in PSID participant families. It collects information on these children’s health, education, behavior, and other relevant factors.

 

Transition into Adulthood Supplement focuses on the transition of PSID family members into adulthood. It collects information on educational and career paths, family formation, health, and other relevant factors.

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HealthCare | Data | Publicly available biomedical data

Study on Global Ageing and Adult Health (SAGE)

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The Study on Global Ageing and Adult Health (SAGE) is part of an ongoing program of work to compile comprehensive longitudinal information on the health and well-being of adult populations and the ageing process. The core SAGE collects data on adults aged 18+ years, with an emphasis on populations aged 50+ years, from nationally representative samples in six countries: China, Ghana, India, Mexico, Russian Federation and South Africa. The study is composed of three stages. 

 

Wave 1 total sample size is over 40,000 individuals. 

 

Wave 2 data collection was completed in 2014/15 in five countries. Wave 2 data collection was released in the public domain at the end 2020. 

 

Wave 3 data collection was completed in March 2020.

 

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HealthCare | Data | Publicly available biomedical data

Survey of Healthy Ageing and Retirement in Europe (SHARE)

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The Survey of Healthy Ageing and Retirement in Europe (SHARE) is a research infrastructure for studying the effects of health, social, economic and environmental policies over the life-course of European citizens and beyond. The SHARE contains various types of data, including data of participants’ health status, economic status, social status, psychological status, lifestyle, and biomarker. The study is led by the Munich Center for the Economics of Aging (MEA), which is part of the Max Planck Institute for Social Law and Social Policy in Germany, and funded by the European Commission and NIA. 

 

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HealthCare | Data | Publicly available biomedical data

The Health and Retirement Study (HRS)

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The University of Michigan Health and Retirement Study (HRS) is a longitudinal panel study that surveys a representative sample of more than 20,000 people over the age of 50 in America. This study has collected data including information about health status, chronic conditions, cognitive function, financial conditions, employment history, retirement, and social factors. It has been widely used not only by academic research studying aging but also by advocacy support groups and policymaker agencies. The study has been conducted by the University of Michigan since 1992 and is supported by the National Institute on Aging (NIH) and the Social Security Administration. 

 

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HealthCare | Data | Publicly available biomedical data

The Indonesian Family Life Survey (IFLS)

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The Indonesian Family Life Survey (IFLS) is an on-going longitudinal survey in Indonesia. The sample is representative of about 83% of the Indonesian population and contains over 30,000 individuals living in 13 of the 27 provinces in the country. It contains data about participants’ information including demographics, health status, healthcare utilization, morbidity and mortality, family structure, income, expenditure, employment, retirement, and education. The study contains 5 waves.

 

The first wave of the IFLS (IFLS1) was conducted in 1993/94 by RAND in collaboration with Lembaga Demografi, University of Indonesia. 

 

IFLS2 and IFLS2+ were conducted in 1997 and 1998, respectively, by RAND in collaboration with UCLA and Lembaga Demografi, University of Indonesia. IFLS2+ covered a 25% sub-sample of the IFLS households. 

 

IFLS3, which was fielded in 2000 and covered the full sample, was conducted by RAND in collaboration with the Population Research center, University of Gadjah Mada. 

 

The fourth wave of the IFLS (IFLS4), fielded in 2007/2008 covering the full sample, was conducted by RAND, the center for Population and Policy Studies (CPPS) of the University of Gadjah Mada and Survey METRE. 

 

The fifth wave of the IFLS (IFLS-5) was fielded 2014-15.

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HealthCare | Data | Publicly available biomedical data

The National Health and Aging Trends Study (NHATS)

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National Health and Aging Trend Study (NHATS) has conducted annual in-person interviews with a nationally representative sample of Medicare beneficiaries aged 65 or older. The study is designed as a platform for scientific study of late-life disability trends and trajectories and has supported research in disability reduction, independent functioning maximization, and quality of life enhancement at older ages. From the interviews, the study collected longitudinal data of participants including health status data, physical function data, cognitive function data, social factors data, and healthcare utilization data. The study is conducted by investigators at Johns Hopkins University and sponsored by the National institute of Aging.

 

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HealthCare | Data | Publicly available biomedical data

The National Study of Caregiving (NSOC)

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National Study of Caregiving (NSOC) periodically interviews thousands of family members, friends, and unpaid caregivers who have helped participants in National Health and Aging Trend Study (NHATS). NSOC I (2011) and NSOC II (2015) provide cross-sectional data about caregiving to older adults, and NSOC III (2017) contains both cross-sectional sample and longitudinal follow-up with caregivers identified in NSOC II (2015). 

 

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